Wednesday, October 13, 2010

As I write this I find myself with salty water pouring from my eyes traveling down the lines in my face as if they were meant as roadways leading my tears before finally dripping from my chin. My eyes so red and swollen I look like I had a run in with a huge swarm of bees. But don't let looks fool you. Although I may look a hot mess, I stand as strong as a statue, fighting through a horrific storm. God has built me to be this strong pillar, a pillar of strength. I have learned to listen to him and rely on him and never question him. I feel comfort knowing he is holding me strong in the test he provides. I find myself not crying out of pity, but rather for loss of innocence, the loss of innocence suffered by my boys. First Parker now Jackson. I find myself intrigued by their maturity and patience. I pray for their unwavering beliefs and continued strength. Parenting isn't something you do, it's an act of watching. The picture you see isn't always pretty but the outcome is usually a gorgeous reminder of how wonderful faith can be. After many unexplained medical issues with Jackson and one surgery later the pediatrician, with my insistence, ordered a full blood work up. They ran all autoimmune panels and the genetic test for the HLA-B27 antigen. I just received a call that all the results were positive and consistent with a rheumatic disease. Here we go again, only this time instead of fear of the unknown I find myself with fear of the known. I fear for the pain Jackson is likely to endure the same way Parker has had too. I am writing this asking all my prayer warriors to send one up for us today. I don't have time to update with all the details just asking for continued prayers today, tomorrow, and forever.

Tuesday, August 10, 2010

Praise Be to GOD!

Give thanks to the Lord, call on his name; make known among the nations what he has done. Sing to him, sing praise to him: tell of all his wonderful acts. Psalm 105:1-2

I just got off the phone with Dr. Carrasco, Parker's rheumatologist, and have fantastic news to share with all of you guys. Dr. Carrasco was placing the same phone call he placed to me exactly one year ago to the week, he was calling to discuss Parkers MRI results. After reviewing Parker's latest MRI images he came to the conclusion that for all medical purposes Parker is now in a medicated remission, meaning that for now there seems to be no traces of inflammation in any of his joints including the SI joints. He did say that there were small traces of fluid remaining and of course previous damage but that he never expected them to be this clear especially after only a year of infusions. We talked for a while about what a blessing this news was and how happy we both were for Parker to be able to continue his life for now without worrying about changing medicines or more surgery. This is a huge step in the right direction and although we all realize how quickly things can change for now we are choosing to celebrate! I give all the glory to God for answering all of our many prayers and give many thanks to you guys for all yours as well. For now Parker will be kept on infusions every 8 weeks and injections once a week. Now if only Jackson can be so lucky and sail through his surgery tomorrow and heal quickly we might all be able to relax for a while and if nothing else slow down the number of doctors appointments:)

Wednesday, August 4, 2010

Two and a half weeks down!

Hello all, I guess the new life I am leading isn't as slow and boring as I once thought it might be. I have enjoyed the quiet and the fact that my house stays clean for longer than it use to but I do miss my kids terribly while they are gone. Today is the halfway point of our third week of school and these boys have kept me hopping lately. Jack has been having sinus issues yet again and after several doctors appointments and testing we have made the decision to have his adenoids removed in hopes that he will finally start to feel better. The surgery is scheduled for next Wednesday and will require him to miss 3 days of school the doctors feel like this is the next step we should take but did admit that there is only 50% chance that it will help him. At this point we will do anything to get him out of his misery and we have faith that God will lead us to a solution soon if we are diligent with our research, I must admit I am feeling like I did when I was trying to find out what was wrong with Parker. You find yourself questioning every symptom and every treatment but this time I am just handing it to God to lead us in the right direction. Parker has been great he didn't do as well after the last infusion as he had the previous one but a day later he was back to "normal":) We have reached the one year mark of his official diagnosis of Ankylosing Spondylitis so its time for repeat MRIs of his SI joints to make sure that the Remicade is working. He seems to be loving 6th grade and definitely walks taller as one of the oldest in the halls at school. He has been very diligent with all the homework so far and very helpful in transitioning Avery and Jack into school. I had to leave before the first bell one day to get Jack to a doctor appointment and Parker realized that Avery and a friend were so deep in conversation that they didn't hear the bell ring so he quickly led them to their class line as a big brother should. Avery.... well.... is Avery winning every award in class for listening and following directions but who didn't see that coming! She has her best friend Hazel from preschool in her class so they have been leaning on each other now that she doesn't have Jack to follow. Jackson, dear lord where to begin with him well first off he is consistently wearing underwear due to Kindergarten law, one I made up. As of this week he is up to 6 or 7 girlfriends, or friends that are girls, every time I'm up at school he is the lone ranger in a huge group of them but I guess that comes from playing solely with Avery since conception. We knew the day the kid was born that he was one of a kind and he is proving that daily, a few Mom's have told me that all their daughters talk about is him, makes me cringe and smile all at once but then again he has that affect on everyone. All Mitch and I can hope for is that the rest of the year goes as smoothly as the last three weeks. If you would add us to your prayers this week we would appreciate it. Parkers MRI's are Friday and Jacks surgery is next Wednesday. Thanks for all of the love and support you continue to bless upon us. Hope the end of your week is filled with fun and love.

Thursday, July 22, 2010

I Made It!

Wow I log on and realize that my last blog was in Feb. just more proof that time is flying by too fast. Well where to begin? We have had a great 6 months, Parker is healthy and doing better than ever. He is responding to the Remicade exactly like they were hoping he would. As of his last infusion in June all of his joints were inflammation free and his last set of MRI's on his TMJs were clear as well. We are praising God daily for this blessing in which he has given us. We have had a fantastic summer full of fun, and traveling. We started off the summer with a trip to SPI/McAllen and it was great to visit all of our old food favorites and visit with my parents, the kids especially loved the beach. Our next trip was to Shreveport for Jambalya Jubilee we were so excited to be joined by Grandma and Paw-Paw this year. I was so excited to share this part of our lives with them and I think they found it very informational. Jambalya Jubilee proved priceless again this year, the kids had a blast and the adults learned so much and had a great time sharing stories and encouragement. On the way home from Shreveport we stopped by Galveston the same as last year and met up with Amanda and her girls and Zach and Darby. We had a blast hanging out soaking up the sun and chilling poolside, Mom even surprised us on day two and came to hang out with us. The kids managed to attend two different Vacation Bible Schools this year between all of our travels and they loved them both. I think that was the first sign that they were getting ready to start school for me. They have begged year after year to attend and were not old enough until this year so of course I found myself on day one crying at the fact that they day had come to drop them off. We finished up our summer this last weekend with a trip to Gruene with the entire family minus Mitch(he had a funeral in Ohio) it was awesome to have the bonding time again, now that the lake has sold it is random that we are all under one roof. We traveled home on Sunday, and Monday was the start of our new lives. All three kids started school, the day I had dreamed about for 5.5 years had finally arrived and I found myself not happy about it, the kids on the other hand were stoked. We marched them in and that was that a few hugs and kisses and they dropped me like a hot cake. Five and a half years of companionship and together time and they didn't even look back, well until 2 when I got a call saying Jack had a migraine and needed to be picked up, then his Mom was the only person he wanted:) We have survived most of the first week and they are all still popping up every morning with smiles on and a kick in their step which I'm sure will be gone soon but I am enjoying it while it lasts. Wow I am exhausted after reliving all of that for you guys but I wouldn't change one bit of it. I am so glad to have had all the time with the kids this summer before school started and would like to thank Mitch for allowing me the opportunity to stay home and raise them all the way through. As we move towards the fall I am hoping that life slows down a little bit, it is crazy to think that I now have one kid in Junior High and two in Kinder. I just remind myself daily how blessed we are to have every moment to cherish and every second to enjoy our many blessings. I would like to thank everyone who has helped me in the last 5.5 years from baby holding, to lending an ear, or chasing a kid, without you guys I don't know that I would have survived twins:)

Friday, February 19, 2010

Thank You

God gave you a gift of 86,400 seconds today. Have you used one of them to say "thank you?" I would like to take the next several to thank everyone in my life who has allowed me to become the person I am today. I have had several influential people that have guided and inspired me in my path. My parents taught me how to strive to be the best that I can be in marriage, motherhood, and in my spiritual life. The love that they showed not only to us but to each other led me to the belief that all is possible with just love. My Dad is the most spiritual man I know I love that he has mirrored his life as the bible leads us to and with that he passed on the love of God and the hope that all things are possible with God. As I hit a rough patch I always feel a peace knowing that he is praying for me and my family daily and it gives me the strength to carry on. My Mother always leads with such grace and dignity in all situations both good and bad and that has pushed me to always strive in the same direction. She has always been someone I look to for guidance and strength. My sisters have always been there for me and been in my corner and even when others don't seem to have my best interest at heart I know that they do. My kids have been my biggest inspiration to accomplish the unaccomplishable they are always there with hugs and kisses no matter what mood I am in. My husband where do I start with him? He is the knight and shining armor of my life and the protector and provider of this family. The last eleven years have been a joy and a total blessing because he has been right by my side through it all. My friends are always there to lend a ear when I need to talk and an encouraging word when I need one. To all of you in my life I THANK YOU with out you I would not be the person I am today. I hope and pray that my kids will be blessed with such great people in their lives. I hold each and everyone of you in my heart and daily pray that God will bless you for blessing me!